Co-occurring conditions

Many people with autism have other conditions that impact their life called ‘co-occurring conditions.’

In fact, anywhere between 60 - 95% of autistic people are estimated to be living with medical or other conditions. Co-occurring conditions can be related to genetics and heritability, as well as medical, developmental, and mental health comorbidities. Some may be present from birth or a person’s early years, but many don’t present until adolescence or adulthood. These conditions may also come and go throughout a person’s life.

An infographic listing the common co-occurring conditions experienced by autistic people.

Understanding some of the common co-occurring conditions

ADHD

It’s reported that at least 1 in 3 people with autism also have attention deficit hyperactivity disorder (ADHD). Some research even indicates that anywhere between 30-80% of autistic people will meet the ADHD diagnostic criteria.  

Autism and ADHD share a lot of common characteristics, including sensory sensitivities, language delays, social and communication challenges and issues around emotional regulation.

Mental health conditions

People on the autism spectrum are often more likely to experience mental ill-health or develop a mental health condition than non-autistic people. For example, rates of anxiety and depression are 70% higher among autistic people than the general population. Here are some of the more common co-occurring mental health conditions experienced by people with autism:

  • Anxiety: One in five autistic people is reported to also have an anxiety disorder, with 40-60% of autistic children experiencing anxiety frequently in their day-to-day lives. Social Anxiety Disorder and Obsessive Compulsive Disorder are the most common anxiety disorders that can co-occur with autism. For people with autism, anxiety can manifest as repeatedly asking questions, having difficulty sleeping or engaging in self-harm or self-injurious behaviours. The social and communication challenges some people with autism face can also trigger anxiety in social situations.
  • Depression: Depression is four times more common among autistic individuals than people who are not on the autism spectrum. Late adolescents, adults and those with substantial support needs and a higher verbal IQ are the most likely to develop a depressive disorder within the autistic population, particularly if they experience bullying. It’s important to note that depression in autistic people often doesn’t present as simply feeling or appearing sad. For example, many children with autism who also have depression experience irritable moods in addition to feeling low.
  • Bipolar disorder: Around 1 in 20 autistic people experience a serious mental health condition, such as bipolar disorder or schizophrenia. As is the case for neurotypical people, people with bipolar disorder and autism usually begin to experience symptoms in their late teenage years or early twenties. Some people can begin to experience bipolar disorder symptoms in childhood, but this is rare, particularly for autistic people.  
  • Eating disorders: Growing research suggests that there may be a link between autism and eating disorders, with one in four people with an eating disorder also meeting the diagnostic criteria for autism. Anorexia nervosa is one of the most common eating disorders experienced by autistic people, with 20% of people with the condition also demonstrating autistic traits. Other eating disorders that disproportionately impact people with autism include Avoidant Restrictive Food Intake Disorder (ARFID) and PICA.
Epilepsy

Epilepsy and other seizure disorders are more common among autistic people than the general population. Around 12% of the autistic population will also have epilepsy, in comparison to 1% of the general Australian population. People with autism and a co-occurring intellectual disability are also more likely to develop epilepsy.

Cerebral palsy

Roughly 7% of children with cerebral palsy also have autism spectrum disorder. These 2 conditions are not related to one another but can co-occur and affect childhood development. CP primarily affects movement while autism mostly affects communication, behavior, and social interactions. However, causes and symptoms can overlap.

Identifying co-occurring conditions

Unfortunately, co-occurring conditions can be difficult to identify and address in autistic people for a variety of reasons:

Service limitations

An autistic person’s existing or local healthcare providers may not specialise in diagnosing or treating co-occurring conditions. For example, one clinician may have expertise in diagnosing autism, but they may not have awareness or experience in identifying gastrointestinal issues.

Social and communication challenges

An autistic person may not have the skills or ability to articulate their challenges and experiences with co-occurring conditions. For example, a non-verbal/non-speaking person may not be able to communicate that they are feeling depressed.  

Overlapping traits

When co-occurring conditions have shared traits, it’s common for one to be mistaken for the other and vice versa, often leading to misdiagnosis or no diagnosis at all. For example, an autistic person may also have ADHD but may go undiagnosed due to the many overlapping traits between the two conditions. Or, a person may be diagnosed with just a language delay when, in fact, they also have autism.

Accessing the right support

It’s vital that autistic people with co-occurring conditions have access to support from both qualified and experienced professionals. To ensure this support is as comprehensive and efficient, a multidisciplinary team is essential. An effective multidisciplinary team should communicate and collaborate frequently to address challenges quickly and provide the most up-to-date support.

Some therapies and supports need to be tailored in order to suit the needs and experiences of autistic people. For example, there are now cognitive behavioural therapy (CBT) programs designed to support people on the autism spectrum. Investigate whether your healthcare provider has prior experience supporting people with autism, or where you can find a provider that offers autism-specific support.

When a child or adult is receiving an autism assessment, they should also be screened for co-occurring conditions, particularly those impacting their mental health. This enables that person to begin receiving support that addresses both their autism and other conditions sooner rather than later.

Many co-occurring conditions come and go or develop later in life. Autistic people should have access to regular health screenings to identify any new conditions that have emerged and adjust the support they are already receiving.

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